- ASHM has initiated a program to support progress in understanding and responding to HTLV-1 in Australia.
- HTLV-1, or human T-lymphotropic virus type 1, shares some features of HIV, in that it is a retrovirus that causes a chronic infection, is transmitted by sex, blood contact and from mother to child, and causes damage to the immune system. However, unlike HIV it causes a much more diffuse range of disease, severe in some people and mild or even non-existent in many others with the infection. Its distribution around the world is highly focal, with very high prevalences in particular geographic locations and populations and very rare elsewhere. HTLV-1 is present at very high rates in some Aboriginal communities of central and northern Australia.
- Research over the past 5 years has led to an increasing awareness in Australia of HTLV-1 and its impact. A group of clinicians and researchers have come together with a representative of from central Australian Aboriginal communities to provide a forum for increasing awareness about HTLV-1, and guiding clinical, public health and community responses to the infection.
- With these goals, an initial round table meeting was held in conjunction with the Australasian HIV and AIDS Conference (ASHM) in Adelaide in November 2015. A working group was establish to take forward outcomes from the meeting.
- Dr Damian Purcell
- Mr Ricky Mentha
- Prof John Kaldor
- Dr Kath Fethers
- Dr Lloyd Einsiedel
- Agenda [information coming]
- Report back [information coming]
- Presentations from the roundtable [information coming]
- Background document and participants [information coming]
- A proposal has been developed for the Commonwealth, requesting seeding support
- Another forum on HTLV-1 took place at the 2017 Australasian HIV and AIDS Conference in Canberra
- The working group is pursuing philanthropic funding, in collaboration with central Australian partners
Published articles and reports
Presentations and webinars
To contact the working group
Please feel free to submit papers and reports to the working group, for consideration for uploading